What is hospice, respite and palliative care?

FAQs1
What does hospice means?
为患者提供临终医护和病入膏肓的私人疗养院。

It was very important to understand what is the child’s hospice.
The key is respite. Hospice is a nursing home for the care of the dying or the incurably ill, which people go there and die, may be when they very near the end of their lives, nothing it would done form the hospital.
What does Child Hospice means?
Child hospice 每年为残疾或生命短暂的小孩提供一到两周的喘息照护。
The children hospice is the same word of hospice, but it was not really what it does. Child hospice here means child can go to CHAS one week a year to receive respite service. It was very confusing but pretty important to know that.
Most the time the family has a baby who has disability or lift limiting  conditions, they go there one week for respite care and one or twice a year.
They going to hospice for respite care.Sometimes the family stay there with the child as well, because the child has complex needs. Usually parents can not sleep all night, so during these one week parent can sleep form the 10:00pm – 8:00am in the morning. So these family have two weeks a years to do that.
So the hospice is not child going to die, they go there long term  and every years( 10 yeas even 15 years). It is quite different of the name’s suggestion. The name suggests the children being born and die very quickly, it is not, it is much longer term.
What is respite care?
Respite care means a break from caring.   Respite care can be: 
  • Residential – the person you care for goes away from home to be looked after by someone else for a while, in a residential care home, respite care centre, or on holiday 
  • Domiciliary – someone comes into your home and takes care of the person you care for a few hours or overnight, to give you both a break
  • Day Care – giving you both a few hours respite during the day
Respite care can be provided in a variety of places such as a hospital unit, a care home, a purpose-built respite care centre or in your own home for a period of up to six weeks.  In some circumstances, respite care can also mean financial assistance to go on holiday or to employ a home care worker to give you a break.
 1)把小孩托管在家外的喘息中心一段时间
2)医护人员到家里照顾患病的小孩
3)日常几小时喘息照顾
What is palliative care?
Information collection from Wikipedia
Palliative care is the term used to describe the care that is given when cure is not possible. The word comes from the Latin ‘palliatus’ (covered or hidden with a cloak) and is used to mean ‘relieving without curing’.

Palliative care:provides relief from pain and other distressing symptoms;

  • affirms life and regards dying as a normal process;
  • intends neither to hasten or postpone death;
  • integrates the psychological and spiritual aspects of patient care;
  • offers a support system to help patients live as actively as possible until death;
  • offers a support system to help the family cope during the patients illness and in their own bereavement;
  • uses a team approach to address the needs of patients and their families, including bereavement counselling, if indicated;
  • will enhance quality of life, and may also positively influence the course of illness;
  • is applicable early in the course of illness, in conjunction with other therapies that are intended to prolong life, such as chemotherapy or radiation therapy, and includes those investigations needed to better understand and manage distressing clinical complications.”
 
姑息治疗 – 缓解 绝症病人的痛苦
目的:
– 坚定生命的信念
– 把死亡看作一个正常的过程
-提供一个支持系统。支持病人主动积极地生活和家庭对抗绝症 + 丧友的长跑。
– 更好地管理和理解临床的并发症
 
 
 
 
 
 
 
 
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